My 18 months old only daughter is having Down Syndrom with Cynotic Heart Disease with Bilateral catarct With Bilateral Deafness.Since her birth I have got severre depression.I am unable to accept tye fact of life.The words that people are saying that our baby is mantally reatarded hurt me when ever i think about her.i love her very much.i have to decide about her heart operation but i think if I go for her heart operation I will give her a dependent life with impared vision & hearing problem.i have already got her eyes operated.She will require two more surgery for her eyes one for IOL.& second eye surgery for squint. Her vision will be limited.She is using hearing aid machine.How should i over come this trauma & accept the fact of life.Should i go for her heart operation

My number three daughter was born with congenial heart defects. At birth, the seven doctors attending (they thought she had two separate hearts before birth), asked me if we wanted them to do anything (like feed the baby), as it was probable she would die within two or three days.
No parent is prepared for this type of decision. It was agonizing, and wrenching.
In her case, we opted for treatment, and it has been successful, after much hospital work, and open heart surgeries, albeit she is 100 percent dependent on her pacemaker, for life, probably. She is now 27 and a practicing pediatrician. One never knows what life will bring.

In your case, here is what I can suggest. Find a support group locally. Ask your doctor's office if they have a telephone number. Or call a local public school, and speak to the counselor and ask them if they know of a support group, or can they get a parent of a down syndrome child to contact you.

I agonize with you. I can not advise you on the heart situation...is is much like what I went thru. I listened to the Lord, and trusted him. No one can make the decision except you, and you have little basis to go on. We will never be certain what lies in the future, or how what we do or don't do will affect the future.

Get in touch with a local Down's Syndrome support group quickly, or a parent who has already been through similar situations. Often we agonize and labor over decisions and choices that many of our ancestors and friends have already suffered thru. Find and use their experiences.

May God continue to bless your life.

I know it must be hard for you, but you've got to accept it and move on. Just becuase she is sick doesn't mean she's not your daughter and you can't love her. spend time with her and just enjoy her company.

I'm really sorry to hear about the challenges you're facing with your daughter's health conditions and the impact it's having on your mental health. It's understandable that you're struggling to accept the situation and the remarks from others.

In such difficult situations, it can be helpful to seek support from professionals who specialize in Down Syndrome and related conditions, as well as from support groups where you can connect with other parents who have faced similar challenges. Here are some steps that may help you overcome this trauma and make decisions about your daughter's health:

1. Seek professional help: Reach out to a mental health professional who specializes in working with parents of children with special needs. They can guide you in coping with depression, accepting the situation, and making decisions that are best for your daughter's health.

2. Join support groups: Connect with local support groups or online communities of parents who have children with Down Syndrome or similar conditions. They can offer advice, share experiences, and provide emotional support during this difficult time.

3. Educate yourself: Learn as much as you can about Down Syndrome, Cynotic Heart Disease, cataracts, and deafness to better understand your daughter's conditions and their potential impact on her life. This knowledge can help you make informed decisions regarding her treatment options.

4. Talk to healthcare professionals: Consult with various healthcare professionals, such as cardiologists, ophthalmologists, and audiologists, to fully understand the implications of her conditions and the recommended treatment options. They can provide valuable insights and help you make informed choices regarding her heart operation and other necessary surgeries.

5. Focus on her quality of life: Consider the potential benefits and risks of her heart operation, as well as the impact it may have on her overall well-being. Discuss this thoroughly with her doctors, as they will have a comprehensive understanding of her specific health conditions and can guide you in making the best decision for her future.

Remember, this is a personal decision that only you can make, based on your love for your daughter and what you believe will provide her with the best chance at a fulfilling life. It's important to find a balance between seeking medical interventions and ensuring her quality of life.

Lastly, take care of yourself as well. Seeking mental health support and finding ways to cope with your own feelings and emotions are crucial for you to provide the best care and support to your daughter.